Research Studies

Miami Project Research Studies

The Miami Project is the world’s most comprehensive spinal cord injury research center, housed in the Lois Pope LIFE Center, a Center of Excellence at the University of Miami Miller School of Medicine. The Miami Project’s international team of more than 200 scientists, researchers and clinicians take innovative approaches to the challenge of spinal cord injury.  Studies include those relating to activity and nutrition, pain, fertility, spasticity, rehabilitation, urinary.

View a complete listing of current Miami Project studies.

If you would like to be considered for any of Miami Project studies, please see Becoming a Research Participant. If you feel you fit the criteria for a particular study and require further information, call the Miami Project Education Office at (305) 243-7108.

 

Other Research Studies

Participation in research therapies for individuals with spinal cord injury available in Gainesville, FL
If you have an incomplete motor spinal cord injury and were injured more than 1 year ago, you may qualify for this study.  The study requires participation in breathing and/or walking treatments for research purposes.  There is no charge to take part in the study and monetary assistance is available to help with travel and lodging.  To find out if you or someone you know may be eligible, please call: The Brain Rehabilitation Research Center in Gainesville: 352-376-1611, ext. 5110 or 800-324-8387, ext. 5110.

 

 Kids STEP Study at UF and Brooks Rehabilitation
This study investigates the recovery of walking in children with incomplete spinal cord injury (SCI).  The study is directed by Dr. Andrea Behrman, PhD, PT, a physical therapist and researcher at the University of Florida.  This investigation is funded by the Craig H. Neilsen Foundation, an organization dedicated to spinal cord injury research and recovery.  Contact: Emily Fox, ejfox@phhp.ufl.edu - (352) 273-5278 - http://locomotor.phhp.ufl.edu/KidsSTEPStudy

 

Biomechanics of Wheelchair Transfers
This is a laboratory-based study to evaluate the risk of shoulder injury associated with transfers between wheelchair and vehicle in persons with spinal cord injury. Four new devices will be compared against an unassisted transfer.  Candidates must live within 100 miles of James A. Haley Va Hospital in Tampa.  Contact Ronald L Olney, PhD at ronald.olney@va.gov or (813) 558-3968.

 

Reducing the Frequency of Urinary Incontinent Episodes in Spinal Cord Injury
The Dignity Study is taking place in Sarasota and in cities worldwide. Qualified participants are men and women with a SCI who experience frequent incontinent episodes due to overactive bladder, may be using self-catheterization to control their bladder, and are looking for alternative treatment options.  Investigational study medication, medical exams, and lab tests will be provided at no charge.  Contact Dr. Thomas William's office in Sarasota at (941) 309-7000 ext. 7116 or visit www.DignityStudy.com to learn more and find additional participating physicians.

 

Surveys

Health and Wellness Survey: Living with SCI
Help identify important health and wellness issues that are significant to persons with spinal cord injury. This valuable information will be gathered to help the Health and Wellness Project at Mount Sinai Department of Rehabilitation determine which issues will be addressed in educational webcast presentations. This project is funded by the Craig T. Neilsen Foundation in collaboration with NSCIA and its affiliate chapters.  Go to the survey.

 

Survey on Wireless Use and Usability by People with Disabilities
The Rehabilitation Engineering Research Center for Wireless Technologies (Wireless RERC) has just launched its updated Survey of User Needs (SUN), its cornerstone survey on wireless use and usability by people with disabilities. The SUN has been completed by over 5,000 people with disabilities since it was first launched in 2001.

This latest version represents the 3rd update to this critical survey. As technology changes, so has the SUN. The data we gather through the SUN provides important information to the wireless industry, government regulators, and other researchers to help them make wireless technology more accessible and more useful to people with all types of disabilities.

 

Caregivers Sought for National Spinal Cord Injury Health Information Needs Study
Model Systems Knowledge Translation Center (MSKTC) is recruiting individuals over 18 who are the primary caregivers of someone who sustained a spinal cord injury. Participants will engage in a phone interview to better understand caregivers’ health information needs.

Participants will be compensated $20.  If you are interested, please call Deeza-Mae Smith at 202/403-5127 or email msktc@air.org for more information.

 

Monitoring Pressure Relief Behaviors and Wheelchair Use of Individuals with SCI
The NIDRR-funded Mobility Rehab Engineering Research Center is investigating the relationship between pressure relief behaviors and the development of pressure ulcers, along with other aspects of every day life using a mobility assistive device. Participants must be individuals with SCI between 20 and 60 who are wheelchair users.

SCI patients between the ages of 20-60 are eligible.  We are studying the relationship between pressure relief behaviors and the development of pressure ulcers. We also hope to learn more about how wheelchairs, wheelchair cushions, and mobility assistive devices are used in everyday life.

We will measure your movement in the wheelchair and ask questions. You will receive up to $50 for participating.  Please call Susan Perlman at 404-894-2861 or email her at: susan.perlman@coa.gatech.edu to find out more.

 

Survey on Intermittent Catheter Use
This survey, from Hollister Incorporated, is designed to give you an opportunity to tell us about yourself and your intermittent catheter (IC) use. It is a venue for you to provide insight into how you gather information related to your intermittent catheter needs and about your catheter product decision making. This information will help to guide Hollister as we design products, programs and services to support intermittent catheter users in the United States.

The People First. Survey is designed for people with Spina Bifida or Spinal Cord Injury who regularly empty their bladders with single-use intermittent catheters (ICs) independently or with the help of another person. Either you or your caregiver may answer the questions regarding your catheter use. To be eligible to complete this survey you must:

  • be over 18 years of age, or be an adult representative of a catheter user under 18.
  • have used an intermittent catheter for over a year, or, if you have used an IC for less than a year, plan to use it long-term.

Your answers to the survey questions will remain anonymous. The first 200 eligible respondents to fully complete this survey (answer all required questions) are eligible to receive a Hollister waistpack as a thank you for your time. To receive the waistpack, you will need to register contact details. Your contact information will be used to mail you the waistpack, however, your personal data will not be linked to your answers in the survey. We will email you to confirm whether you are one of the first 200 eligible participants and will receive a waistpack.